He Supreme Court has just sentenced the SES to pay for the treatment of Pablo Andrada Sevillaa young man from Plasencia with a disease rara In the eyes. However, Health has been paying for the medication prescribed by your doctor from 2022, in which the first favorable ruling came out. Even so, The family has paid for it for 11 months, about 50,000 euros of expenditure, at a rate of 4,543 euros per month, and is now considering claiming that amount from the SES.
“We think it is fair because we have had to make a superhuman effort, not only economic, but also psychological and physical. For this reason, we are thinking about filing some type of claim, since in the end we were right,” explains Pablo’s sister, Mercedes Andrada.
After having read “the 28 pages” of the sentence conscientiously, what he feels is that, “despite the time that has passed, justice has been done“.
Specifically, it has been almost three years since his brother started showing symptoms of Leber Hereditary Optic Neuropathy what he did lose almost all vision in both eyes. It was in the summer of 2021 and, in November, a medication, Raxone, was prescribed outside the financing of the National Health System, although it was paid for in 49 cases in other autonomous communities.
“We have had to make a superhuman effort, not only economically, but also psychologically and physically”
“In November and December, the SES Compassionate Use Commission denies funding of the medication to my brother.” They had no choice but to try pay for the medicine, buying it in Germany and go to court.
All while doctors pointed out that, to be effective, Raxone had to be administered during the first year of the appearance of his symptoms.
Therefore, it has been a long-distance race, since a court Administrative Litigation of Mérida ruled in favor of them in 2022, until, in February 2023, the TSJEx rules in favor of the SES. Even so, “they did not stop paying for the medication, which I believe they began to pay for out of charity, but we believed it was fair to continue” and, therefore, they appealed the sentence.
The sentence for the Placentino case establishes jurisprudence
Now the Supreme Court has said that violated the rights to physical integrity and equality of Pablo Andrada because, since 2012, the treatment of 49 patients from other autonomous communities had been paid for and the National Health System “is not a watertight compartment,” emphasizes Mercedes Andrada, alluding to the sentence.
Thus, after everything that happened, they have been left “with a good taste in their mouths because all the effort has been worth it“.
And not only because of his brother, but also because this sentence “creates jurisprudence and is a giant step for all the people affected by this neuropathy and who are not paying for the treatment either. The ruling says that, as long as the requesting doctor prescribes the treatment, they have to give it.”
“Despite the time that has passed, justice has been done, it has been worth it”
Her brother’s situation has led Mercedes Andrada to know the Leber Optic Nerve Atrophy Association (ASANOL), and has even joined its board of directors. He states that there are about 140 patients in Spain and only Pablo Andrada in Extremadura. From this group, he now fights to make doctors more aware of the disease and help patients and their families adapt to neuropathy and learn about the therapies that exist, today, “only Raxone.”
Placentine has improved
Since her brother has been receiving her, Mercedes explains that ““It has improved a lot.” and it is adapting to the situation “He feels lucky to have received the treatment, even though it was acquired in Germany” and to have had a family that was able and knew how to get it.
They are also “very “grateful” for all the support they have received of Placentinos and citizens in general with the initiatives they organized to raise money to pay for the treatment, which Pablo still needs because he must receive it for at least 24 months and the time has not yet ended. Your doctor will tell you when he should stop it.
For now, “this opens a door and we hope it helps other people,” concludes Mercedes.
2024-05-02 13:22:51
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