Savona, Italy – A powerful story of community and resilience culminated this past Saturday with the laying of the first stone for “La Casa di Silvia,” a dedicated home for individuals and families affected by Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. The project, spearheaded by AISLA (the Italian Association for the Fight Against ALS) transforms a potentially lost property into a vital resource, offering accessible seaside respite on the Savona coastline.
The ceremony, held on the beach at Scaletto Senza Scalini – a location already celebrated for its commitment to accessibility and inclusion – marked more than just the start of construction. As Alberto Fontana, a delegate of the AISLA National Board and the project’s promoter, explained, “There’s a time when stories aren’t just told, they’re lived.” He connected the project’s commencement with the arrival of spring, symbolizing a rebirth and a renewed commitment to improving the lives of those living with ALS.
“This isn’t just a house,” Fontana emphasized. “It’s a deliberate choice to build possible what is too often impossible. To restore time, space, and normalcy to people and families.” AISLA is undertaking this responsibility in collaboration with the Codispoti family, a network of volunteers, local institutions, and a growing community of supporters who recognize the project’s broader significance.
The location itself holds deep meaning. Scaletto Senza Scalini, meaning “Scaletto Without Steps,” began as a simple effort to remove physical barriers eighteen years ago. Ugo Capello, representing the ‘Coop Scaletto senza scalini’, recounted how the initiative evolved beyond physical accessibility to address mental barriers as well, creating a truly inclusive space for everyone. “Today, this house is a dream realized and a value for the entire city,” he said.
The house, approximately 80 square meters in size, will provide a fully accessible and equipped space for people with ALS and their families to spend time by the sea throughout the year. The project addresses a critical need for specialized respite care and opportunities for quality of life enhancement. The initiative was made possible through contributions from AISLA’s regional branches – spanning from Savona-Imperia to Brescia, Asti to Calabria, and beyond – as well as support from organizations like the Vialli and Mauro Foundation, the Fiascolata di Dego, and the Spazio Aperto Cooperative.
The laying of the first stone was a simple, yet poignant ceremony. Flags waved gently, attached to driftwood washed ashore, representing a welcoming presence. The event was underscored by the music of Luca Carboni’s “Primavera” (Spring), further emphasizing the theme of renewal. A slate plaque, inscribed with the words “Here is born the house of Silvia. A place of welcome and freedom. March 21, 2026. Life is beautiful,” was placed to commemorate the occasion, crafted by Fazzari Marmi as a donation to the project.
The driving force behind “La Casa di Silvia” is deeply personal. Pino Codispoti, Silvia’s father, shared his family’s journey, emphasizing the importance of continuing to care and support those living with ALS. “If this house can be useful to even one person, then all of this will have meaning,” he stated. “Given that life, as Silvia always remembered, despite everything remains a beautiful thing. And always finds a way to initiate again.”
The project represents a significant step forward in providing dedicated support for individuals and families navigating the challenges of ALS. AISLA’s commitment, combined with the outpouring of community support, demonstrates the power of collective action in creating meaningful change. Riccardo Viaggi, Savona’s Councilor for Social Policies, affirmed the city’s full support, recognizing AISLA’s initiative as “a concrete response that arises from a story and becomes a heritage for all.”
Construction is slated to begin shortly, with the goal of opening “La Casa di Silvia” to guests during the next summer season. Further resources will be needed to complete the project, but the foundation has been laid – both literally and figuratively – for a space that promises to offer comfort, accessibility, and a renewed sense of hope to those affected by ALS.
For those interested in learning more about AISLA and supporting their perform, please visit their official website. The organization continues to seek donations and volunteers to help bring this vital project to fruition.
The next step for “La Casa di Silvia” is the completion of the renovation work, with an anticipated opening for the summer of 2026. Updates on the project’s progress will be shared by AISLA through their official channels.
